Child Cancer & Disease
2024
2024-02-15 The Creating Hope Reauthorization Act, which was introduced in 2024 to incentivize drug manufacturers to develop new treatments for children with rare pediatric diseases, will be set to expire with no motion by the Trump administration.
https://www.congress.gov/bill/118th-congress/house-bill/7384
https://www.congress.gov/bill/118th-congress/senate-bill/4583/titles
https://everylifefoundation.org/wp-content/uploads/2024/07/Creating-Hope-Reauthorization-Act_ELF.pdf
2025 August
2025-08-26 The Trump administration ended funding for pediatric brain cancer research after March 2026, halting $4M per year.
https://aacrjournals.org/cdnews/news/2629/Pediatric-Brain-Tumor-Initiative-to-End
https://coloradonewsline.com/2025/09/17/childhood-brain-tumor-research-colorado/
https://www.statnews.com/2025/09/15/pediatric-brain-tumor-consortium-disbanding-funding-trump/
https://aacrjournals.org/cdnews/news/2629/Pediatric-Brain-Tumor-Initiative-to-End
https://coloradonewsline.com/2025/09/17/childhood-brain-tumor-research-colorado/
https://www.statnews.com/2025/09/15/pediatric-brain-tumor-consortium-disbanding-funding-trump/
https://www.childrensbraintumorproject.org/2025/08/29/nytimes_pbtc/
2025 September
2025-09-17 A bipartisan legislation entitled “Give Kids a Chance Act” was passed despite opposition from some in the pharmaceutical industry. This bill is designed to accelerate the development of new drug combinations for pediatric cancer patients and was introduced by Democrat Senator Bennet and Republican Senator Mullin, proving that we CAN work together despite recent efforts of the Trump administration to instigate civil dispute.